Living with XLH--healthcare transition

This week, Dr Jessica Sandy explores the full landscape of healthcare transition (HCT) in X‑linked Hypophosphataemia (XLH). Drawing on clinician surveys, international consensus guidelines, and emerging Australian research, Dr Sandy highlights current challenges including lack of structured processes, limited resources, and the mental health burden and presents key recommendations such as early preparation, joint transition clinics, transition coordinators, holistic assessments, and XLH‑specific resources.

Topics discussed:

1. What is healthcare transition?
2. Why it matters
3. How gaps in transition can affect young people's health and wellbeing

Links mentioned in this episode: www.xlhaustralia.com

This podcast is hosted by ZenCast.fm