Living with XLH: Parenting a child with a rare disease

Living with XLH: Parenting a child with a rare disease

Exploring the journey of parenting a child with a rare condition.

Show notes

This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.

Topics discussed:

  1. The journey to diagnosis
  2. Parenting a child with a rare disease
  3. Navigating healthcare and advocacy

Links mentioned in this episode: www.xlhaustralia.com

This podcast is hosted by ZenCast.fm

Hosts


Guests

Sandy Bevc

Sandy Bevc

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Naomi Ford

Naomi Ford

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